NBIAready: Online Collection of Natural History Patient-reported Outcome Measures
Condition(s):Neurodegeneration With Brain Iron Accumulation (NBIA)Last Updated:October 8, 2020Recruiting
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Condition(s):Neurodegeneration With Brain Iron Accumulation (NBIA)Last Updated:October 8, 2020Recruiting
Condition(s):Neurodegeneration With Brain Iron Accumulation (NBIA); Pantothenate Kinase-associated Neurodegeneration (PKAN); Beta-Propeller Protein-Associated Neurodegeneration (BPAN); Mitochondrial Membrane Protein Associated Neurodegeneration (MPAN); Fatty Acid Hydroxylase-associated Neurodegeneration (FAHN); Kufor Rakeb Syndrome; Neuroferritinopathy; Aceruloplasminemia; Woodhouse Sakati Syndrome; COASY Protein-associated Neurodegeneration (CoPAN); PLA2G6-Associated Neurodegeneration (PLAN)Last Updated:December 21, 2023Recruiting
Condition(s):Rare DiseasesLast Updated:September 29, 2021Not yet recruiting
Condition(s):Intellectual Disability; Rubinstein-Taybi Syndrome; Cystic Fibrosis; Congenital Heart Defect; Periventricular Nodular Heterotopia; Neurodegeneration With Brain Iron Accumulation (NBIA); AlbinismLast Updated:February 21, 2024Recruiting
Condition(s):Huntington DiseaseLast Updated:September 9, 2022Recruiting
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