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Efficacy of Rapamycin (Sirolimus) in the Treatment of BRBNS, Hereditary or Sporadic Venous Malformation
Condition(s):Blue Rubber Bleb Nevus Syndrome; Venous MalformationLast Updated:December 19, 2018Unknown status
Blue Rubber Bleb Nevus Syndrome: 3 Clinical Trials
Hide Studies Not Open or Pending
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Lymphatic Anomalies Registry for the Assessment of Outcome Data
Condition(s):Lymphatic Malformation; Generalized Lymphatic Anomaly (GLA); Central Conducting Lymphatic Anomaly; CLOVES Syndrome; Gorham-Stout Disease (“Disappearing Bone Disease”); Blue Rubber Bleb Nevus Syndrome; Kaposiform Lymphangiomatosis; Kaposiform Hemangioendothelioma/Tufted Angioma; Klippel-Trenaunay Syndrome; LymphangiomatosisLast Updated:September 13, 2022Recruiting
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Registry for Vascular Anomalies Associated With Coagulopathy
Condition(s):Multifocal Lymphangioendotheliomatosis With Thrombocytopenia; Cutaneovisceral Angiomatosis With Thrombocytopenia; Vascular Anomaly With Thrombocytopenia; HemangiomasLast Updated:September 16, 2019Completed