Motivation of Patients Diagnosed With Multiple Sclerosis to Become Citizen Researchers

Overview

The study will based on qualitative methods investigate motivational factors among patients diagnosed with multiple sclerosis for registering nutrition, environmental factors, stress provoking factors and physical activity (NESPA). The aim is to gain knowledge on motivational factors for using a digital tool for collecting data on NESPA and incorporate this knowledge into a form which can be used in requirement specifications for such a digital tool.

Full Title of Study: “Identifying Motivational Factors for Registering Nutrition and Lifestyle Factors Among Patients With Multiple Sclerosis”

Study Type

  • Study Type: Observational
  • Study Primary Completion Date: April 2017

Interventions

  • Other: Qualitative evaluation

Arms, Groups and Cohorts

  • Semi-structured interviews
    • 20 participants (anticipated)
  • Questionnaire survey
    • 400 respondents (anticipated)
  • Focus group interviews
    • 3-5 focus group interviews (anticipated)

Clinical Trial Outcome Measures

Primary Measures

  • Analysis of qualitative interviews and measurement of eHealth literacy (eHealth literacy questionnaire)
    • Time Frame: Up to 6 months
  • Evaluation of motivational factors based on questionnaire survey
    • Time Frame: Up to 10 months
  • Analysis of focus group interviews on motivational factors for registering nutrition and lifestyle factors among patients with multiple sclerosis
    • Time Frame: Up to 12 months

Participating in This Clinical Trial

Inclusion Criteria

  • Age 18 or above – Read, write and understand Danish Exclusion Criteria:

  • Aphasia – Severe cognitive impairment

Gender Eligibility: All

Minimum Age: 18 Years

Maximum Age: N/A

Are Healthy Volunteers Accepted: No

Investigator Details

  • Lead Sponsor
    • University of Copenhagen
  • Collaborator
    • Danish Multiple Sclerosis Society
  • Provider of Information About this Clinical Study
    • Principal Investigator: Astrid Knudsen, Industrial PhD Student – University of Copenhagen
  • Overall Contact(s)
    • Astrid K Knudsen, PhD Student, askn@sund.ku.dk

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